John Elder Robison Resigns from His Positions with Autism Speaks

John Elder Robison Resigns from His Positions with Autism Speaks.

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John Elder Robison Resigns from His Positions with Autism Speaks

What can you say about an advocacy group that loses its only member who is part of the target group they are working for?  You would say that group was doing a bad job at working for the people they advocate for.  This is now the case with Autism Speaks.  For the past few years, John Elder Robison, a man with Asperger’s Syndrome, has been working on the science and treatment boards at Autism Speaks.  He resigned just this week.  He explains his reasons in this post:

http://jerobison.blogspot.com/2013/11/i-resign-my-roles-at-autism-speaks.html

I am not going to summarize what he said because he is capable of speaking for himself, and because he enumerated his issues with Autism Speaks in a succinct manner.  I will say this, however:  I commend Robison for trying to work with Autism Speaks.  Upon hearing about his appointment, I feared he would end up being tokenized(well, he was) and start to tout the Autism Speaks mantra of fear, dehumanization, and stigma.  But his post shows otherwise.  He went into an organization knowing full well about its PR issues, its issues with allocating funds, and its general unwillingness to listen to the voices of autistic people.  It makes me upset that Robison could work for an organization that targets a population which he is a member of and not take anything he tried to say or do with the legitimacy it deserved.  From his post, it appears that he spent a great deal of time being frustrated with them and their inability to listen to him.  In my eyes, he chose the perfect reason and time to sever ties with Autism Speaks.  (For the post Robison is referring to, here’s the link: http://www.autismspeaks.org/news/news-item/autism-speaks-washington-call-action)

For him to see a post like this, after working with that organization for that long a period of time, must have been completely infuriating.  It’s infuriating to me, and I don’t even work for the organization.  For it to be 2013 and to have one of the founders of the largest autism organization worldwide to call us autistics public health crises, the cause of families breaking up, and consider us general burdens to society is disgusting.  This type of rhetoric has no place in 21st Century dialogue.  No wonder why so many autistic people think Autism Speaks is evil.  Look at what they’re saying about us!  For Robison to stay on as long as he did shows that he has more patience than almost anybody I can think of!

Oh, and I find it funny how the science world believes we lack empathy.  That we can’t understand what other people are thinking or that we are not considerate of other people’s feelings.  So many believe that autistic people’s primary deficit is being unable to understand others and empathize with them.  But, even after all of the pushback Autism Speaks has faced from autistic people, whether it be after the “Autism Every Day” incident, or the pushback after the release of the “I Am Autism” video, they still use the same exact scare tactics they used before to promote their organization.  It’s as if they’ve learned nothing over the past few years.  They have learned nothing about how autistic people feel when they are called public health crises, diseased, defective, etc.  They have learned nothing about how to work with autistic individuals in developing the best solutions for mitigating disability and creating a more equitable society for everybody, autistic and neurotypical alike.  They have learned nothing about advocacy as a whole.  I think we all now know who really lacks empathy…

So, now that Autism Speaks’ only autistic member is gone, the organization can no longer make any claim whatsoever, that they are inclusive.  They have gone back to being 100% against the disability rights’ movement’s mantra: “Nothing about us, without us!”  Finally, they have thrown away any possibility of being able to have a dialogue with autistic individuals about how to improve our lives.

Are you listening now, Autism Speaks?  I doubt it.  So, you can go on with your fear-mongering, your dehumanization, and your ignorance.  We’ll move on without you.

“If you won’t listen to reason, there’s always…Towanda.”

On “Tolerance”

The word “tolerance” gets thrown around a lot in many different circles.  Often, in debates, one side will call the other intolerant of their views, and vice versa.  In the United States, many people who subscribe to liberal views want to be viewed as tolerant of opposing views.  However, when they critique the views of conservatives, conservative people will try and identify a hypocrisy in liberal’s views, saying they aren’t truly tolerant because they don’t agree with their views.  I feel this whole dichotomy over-simplifies the use of “tolerance” when it comes to debate, and it’s time that is changed.

The most important thing I want people to realize is that blanket “tolerance” is not a virtue.  Some seem to think that being tolerant of something is synonymous with being good or being right, but that isn’t always the case.  There are obvious things that people should be intolerant of, like genocide, rape, exploitation of people, starvation, and poverty, among other things, but things get a little more nuanced when we talk about “culture war” issues or neurodiversity.

So, are there things I am intolerant of?  Yes, absolutely, and that’s not a bad thing.  There are a lot of things I am intolerant of.  A few examples: I am intolerant of the idea that religious beliefs should dictate public policy, I am intolerant of people who will blame rape victims for their rape, and I am intolerant of the idea that autistic individuals should spend their lives trying to act “normal” in order to appease society.  Intolerance is part of forming any argument of belief you may have.  You don’t have to be tolerant of everything in order to put yourself in the right.  A degree of intolerance provides evidence of applying critical thinking skills into forming your argument.  The important thing is striking the right balance of tolerance and intolerance.  When arguing, you must show enough tolerance to critique ideas, and not people.  Critiquing people and showing blanket intolerance for them does not get your point across and show a lack of critical thought on your part.  In short, do your research, know what you’re talking about, and solidify your position on an issue.

So, my final point is that intolerance is not something you should be afraid of.  It is a tool, but it is one that must be used carefully and with a lot of thought.

 

“If you won’t listen to reason, there’s always…Towanda.”

This is How You Get Your Point Across

I have been following Lauren McNamara’s blog and YouTube Channel for a number of years now, and she has consistently impressed me with her outstanding ability to form a tight, well-thought out, well-researched, and interesting argument.  The arguments she makes in her videos and blog posts are so tight and concise that there is no real way for people to poke holes in it.  Lately, McNamara has been getting national media attention for being a witness for the Chelsea Manning case.  Much of her time in interviews, however, have been about Manning receiving hormonal treatments while she is in prison.  Here is McNamara’s latest interview on CNN:

https://www.youtube.com/watch?feature=player_embedded&v=JcC383pv5xA

As you can see from this video, McNamara gives factual, concise answers to each of the questions she is asked.  This is nothing surprising to me, since I am already aware of her intellect and the way she conveys an argument.  What I am really impressed by, however, is her ability to remain calm and collected while she speaks to the reporter.  The reporter doesn’t seem to accept being transgender as something that is legitimate, frequently referring to Chelsea Manning as “he”.  McNamara frequently corrects him without getting visibly angry or annoyed.  Her ability to maintain calm during that interview is impressive.

I hope we see a lot more of Lauren McNamara on a national stage.  Her type of commentary is something the world needs much more of!

Her YouTube Channel:

https://www.youtube.com/user/ZJemptv?feature=watch

Her blog:

http://freethoughtblogs.com/zinniajones

“If you won’t listen to reason, there’s always…Towanda.”